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Meta Board => Off Topic Fun => Topic started by: trappedslider on October 15, 2012, 03:32:30 PM

Title: the end might be near?
Post by: trappedslider on October 15, 2012, 03:32:30 PM
so due to asthma I was in the hospital till this an hour ago or...this will more than likely happen more often due to the lost of a key medicaiton that I needed. The loss of it was due to finical reasons the copay for hte medication is 440 for one dosage,when I have to go in every two weeks for it. I say copay because the medicare insurence plan I have covers 90% of the cost which is 4,800 give or take for one dosage.


So without the shots my life span drops down to whenever I have an asthma attack that kills me,however I am going to my lung doctor next week to see what I can do about the shots and see if a lung transplant is a possiblity.
Title: Re: the end might be near?
Post by: bhu on October 15, 2012, 04:22:36 PM
WHat state are you in?

Have you filed disability?

Is there another med they can substitute?

Between everyone here I'm sure we can research something for you online.
Title: Re: the end might be near?
Post by: trappedslider on October 15, 2012, 06:41:04 PM
WHat state are you in?

Have you filed disability?

Is there another med they can substitute?

Between everyone here I'm sure we can research something for you online.

I'm already on disablity,thats how I get the medicare,this is the drug that I was taking http://www.xolair.com/xolair/index.html (http://www.xolair.com/xolair/index.html)  wiki article: http://en.wikipedia.org/wiki/Omalizumab (http://en.wikipedia.org/wiki/Omalizumab)and becuase of the fact that it is part of a class of asthma drugs known as monoclonal antibodies, there wont be a generic version ever due to current laws.
Title: Re: the end might be near?
Post by: Quillwraith on October 15, 2012, 07:14:15 PM
Can I help in any way? Letting someone probably die is not okay.
Title: Re: the end might be near?
Post by: bhu on October 15, 2012, 07:14:44 PM
would allergy shots in combination with other asthma meds help?  It's all  I can find.
Title: Re: the end might be near?
Post by: trappedslider on October 15, 2012, 07:23:14 PM
would allergy shots in combination with other asthma meds help?  It's all  I can find.
I'll have to add to the questions i'll ask my doctor next week.
Title: Re: the end might be near?
Post by: bhu on October 15, 2012, 07:27:31 PM
would allergy shots in combination with other asthma meds help?  It's all  I can find.
I'll have to add to the questions i'll ask my doctor next week.

The article referred to immunotherapy via allergy shots if that helps
Title: Re: the end might be near?
Post by: awaken_D_M_golem on October 15, 2012, 08:40:18 PM
 :bigeyes ... that F-ing blows.  Life is not fair, and neither is "health" care.


Move to a desert (?)
Move to a farm (?) (animal dander gives immuno-system something else to do)

Ask your Docs / Nurses if they are fans of Prince the 80s pop star.
Then sing to them (badly is o.k.) the entire lyrics to:  "I would die for you."
... with an empty bottle of the meds in your hand.  Drop it at the end.

Title: Re: the end might be near?
Post by: ariasderros on October 15, 2012, 09:06:39 PM
:bigeyes ... that F-ing blows.  Life is not fair, and neither is "health" care.
Move to a desert (?)
I agree with the entire first part.

Desert doesn't work as well anymore, because all of the people moving out there wanted lawns, so they irrigated the desert, granting it some of the very humidity that they wanted to get away from. Allowing plants to grow that don't belong there. Including plants that people were trying to get away from.
Nope, desert doesn't work as well anymore  :banghead
Title: Re: the end might be near?
Post by: trappedslider on October 15, 2012, 09:51:12 PM
I already live in the desert well NEw mexico anyway lol and I think they would pay jsut to STOP the singing the moment i start lol
Title: Re: the end might be near?
Post by: bhu on October 15, 2012, 10:43:10 PM
This is going to sound disgusting but have you heard about parasite therapy for allergies?
Title: Re: the end might be near?
Post by: trappedslider on October 23, 2012, 06:00:46 PM
So bad news from the lung doctor I can't travle anywhere outside of roswell,and I may not make it past this coming spring due to my asthma.
Title: Re: the end might be near?
Post by: littha on October 23, 2012, 06:06:39 PM
If it becomes super desperate you could always try and get to the UK, grab a job and get treatment from the NHS. Certainly better than dying if you manage it...
Title: Re: the end might be near?
Post by: bhu on October 23, 2012, 06:43:10 PM
whhat are u allergic to?
Title: Re: the end might be near?
Post by: trappedslider on October 23, 2012, 06:46:59 PM
whhat are u allergic to?

Trees,molds,furs,fungi, or to put another way "Everything that grows"
Title: Re: the end might be near?
Post by: bhu on October 23, 2012, 06:51:43 PM
have you and your doctor looked into parasites?

http://www.guardian.co.uk/lifeandstyle/2010/may/23/parasitic-hookworm-jasper-lawrence-tim-adams
Title: Re: the end might be near?
Post by: trappedslider on October 23, 2012, 06:56:39 PM
have you and your doctor looked into parasites?

http://www.guardian.co.uk/lifeandstyle/2010/may/23/parasitic-hookworm-jasper-lawrence-tim-adams

I totally forgot about that,but they did a lung test on me and my lung cpacity is way down compared to the last time it was done a few months back
Title: Re: the end might be near?
Post by: bhu on October 23, 2012, 06:59:47 PM
they've moved forward since that article.  Ask your doc about it.  I know it's disgusting, but if it keeps you alive...
Title: Re: the end might be near?
Post by: nijineko on October 23, 2012, 08:04:17 PM
i can't offer much more than spiritual type support, but feel free to contact me if you are wanting something in that vein. this may sound weird, but, do you perchance feel that it is your time? or feel contrariwise?
Title: Re: the end might be near?
Post by: awaken_D_M_golem on October 23, 2012, 08:08:46 PM
Very interesting info ... so I tried googling:
http://healthland.time.com/2012/04/18/doctor-infects-himself-with-parasites-for-health-experiment/
Oh and Bhu, there's a link to Kitties in there too.


 :-\ +  ;)
You got a gallow's humor Bucket List, trappedslider ?
Title: Re: the end might be near?
Post by: trappedslider on October 23, 2012, 08:16:06 PM
i can't offer much more than spiritual type support, but feel free to contact me if you are wanting something in that vein. this may sound weird, but, do you perchance feel that it is your time? or feel contrariwise?

dude,that would be awsome if you could make that call and get me on the prayer list

You got a gallow's humor Bucket List, trappedslider ?
nope..other than i wanna make out with a igrl again...haven't doen that since before the divorce lol
Title: Re: the end might be near?
Post by: nijineko on October 23, 2012, 09:04:59 PM
i can't offer much more than spiritual type support, but feel free to contact me if you are wanting something in that vein. this may sound weird, but, do you perchance feel that it is your time? or feel contrariwise?

dude,that would be awsome if you could make that call and get me on the prayer list

pm me your full, real name, and i can make that happen.
Title: Re: the end might be near?
Post by: altpersona on October 23, 2012, 09:13:42 PM
hell, im pming nijineko my deets  :lol
Title: Re: the end might be near?
Post by: PlzBreakMyCampaign on October 25, 2012, 10:42:57 PM
Is it just the allergens that cause the asthma attacks? Living in a bubble is unrealistic, but we have purifiers and tanks of air nowadays.

Also have you tried body-building for increased chest cavity? Sure you'd have to be on air while you do it to not trigger and attack, but it seems doable. It sounds a lot cheaper than those meds.

Have you tried thinner air? Mountains can be beautiful much of the year. That's all I got.
Title: Re: the end might be near?
Post by: brujon on November 09, 2012, 10:13:05 AM
Is it just the allergens that cause the asthma attacks? Living in a bubble is unrealistic, but we have purifiers and tanks of air nowadays.

Also have you tried body-building for increased chest cavity? Sure you'd have to be on air while you do it to not trigger and attack, but it seems doable. It sounds a lot cheaper than those meds.

Have you tried thinner air? Mountains can be beautiful much of the year. That's all I got.

If his lung capacity is too low, any exercise could induce an asthma attack. Shit's hard.

I know colder climates tend to exacerbate the effects of asthma attacks, but since yours is allergen related, have you considered moving to Alaska? Humidity is as low as it is in any desert, and because of it's temperature, animals and farms are nonexistant. I hear there's also government incentive for getting people to move there...
Title: Re: the end might be near?
Post by: trappedslider on November 13, 2012, 07:07:15 PM
once aga i'm in the hospital,however i am planning on talking to some one at legal aide for my state to see what exactly can be done
Title: Re: the end might be near?
Post by: awaken_D_M_golem on November 13, 2012, 07:30:25 PM
 :-\ damn

Hugs !


You get local family or friends to visit ?

Title: Re: the end might be near?
Post by: bhu on November 13, 2012, 07:49:07 PM
hugs from kitteh  :(
Title: Re: the end might be near?
Post by: trappedslider on November 13, 2012, 10:23:22 PM
:-\ damn

Hugs !


You get local family or friends to visit ?
yeah i have family, i should be out tomrrow

hugs from kitteh  :(

i'm allgeric to kitteh  :( unless your trying to get at me  :-\
Title: Re: the end might be near?
Post by: nijineko on November 14, 2012, 12:20:42 AM
i think bhu was referring to virtual hugs from bhu-self.
Title: Re: the end might be near?
Post by: bhu on November 14, 2012, 01:52:33 AM
Yuppers
Title: Re: the end might be near?
Post by: trappedslider on November 14, 2012, 08:15:18 AM
in that case  :cloud9
Title: Re: the end might be near?
Post by: trappedslider on November 14, 2012, 09:54:50 PM
i am back home tonight :jumping
Title: Re: the end might be near?
Post by: bhu on November 14, 2012, 10:45:44 PM
Woot!

You doing ok?
Title: Re: the end might be near?
Post by: trappedslider on November 15, 2012, 12:27:02 AM
Woot!

You doing ok?

for now yes
Title: Re: the end might be near?
Post by: nijineko on November 15, 2012, 05:13:47 PM
congrats!
Title: Re: the end might be near?
Post by: awaken_D_M_golem on November 15, 2012, 06:10:15 PM
Are loud virtual Sneezes , as annoying as loud real life Sneezes ??


There's a ~lady at my local library who sneezes so loud
upstairs, babies start crying on the floor downstairs.
Title: Re: the end might be near?
Post by: Hallack on November 16, 2012, 10:09:52 AM
Without knowing any particulars of your situation or the roots of your condition I would advice looking into researching and eating a very anti-inflammatory diet. 

Basically, stay away from Grains, sugars, processed foods, fried foods, vegetable oils and others similarly loaded with Omega 6's.  Instead eat heavily of fruits, vegies, nuts, the best meats you can (mostly trying to avoid grain fed meats). For oils use coconut oil, butter (real stuff), and olive oil (don't cook it).

I hope things work out for you.

Title: Re: the end might be near?
Post by: wotmaniac on November 16, 2012, 07:14:37 PM
I've heard that eating locally grown honey/bees wax can help boost tolerance to plant allergies.
just a random thought. :shrug
Title: Re: the end might be near?
Post by: Shadowknight12 on November 18, 2012, 01:12:46 AM
Have you tried any over the counter antihistaminics? And what about corticosteroids? They might be expensive if your health insurance doesn't cover them, but they are good for keeping allergies from flaring up too badly. Also, I don't know how expensive your inhalers might be, but it seems to me that if you can adjust your budget to buy them, they might be a worthwhile investment.

Also, forgive the stupid question from the foreigner, but if you have a very dangerous asthma attack, couldn't you call the ER regardless of the state of your health insurance or medicare? Aren't they obligated to give you temporary healthcare to save your life? If they are, then all you have to do is keep a cellphone with you at all times and 911 on speed dial.
Title: Re: the end might be near?
Post by: bhu on November 18, 2012, 02:27:52 AM
They are obligated regardless of your ability to pay, but much like any corporate entity they are then allowed to hound you to death for the money.  In short they'll do whats necessary to save you regardless of how much it costs, and then they send the sharks to tell you to pay up after they max out the bill.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 18, 2012, 02:34:03 AM
Wow, even with Obamacare? Wasn't that supposed to solve these exact kind of problems?
Title: Re: the end might be near?
Post by: bhu on November 18, 2012, 02:53:44 AM
Most of that doesnt take effect until 2014, and there will still be gaps in coverage.  And thats assuming the house doesnt defund it in some way.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 18, 2012, 03:06:08 AM
Wow, that's very unfortunate.

Well, if all else fails, save up for a portable shot of epinephrine (it comes in an autoinjector). Those are lifesavers in case of Anaphylaxis and Asthma (http://en.wikipedia.org/wiki/Epinephrine#Anaphylaxis), and they might be cheaper than a visit to the ER. Ask your doctor about prices and consider buying one before spring hits.
Title: Re: the end might be near?
Post by: wotmaniac on November 19, 2012, 12:33:38 AM
Wow, even with Obamacare? Wasn't that supposed to solve these exact kind of problems?
Oh, you must have missed the real kick-in-the-nuts with this .... the payment for treatment of chronic conditions decreases each and every time you use it.
Title: Re: the end might be near?
Post by: Libertad on November 19, 2012, 12:41:22 AM
I can't really provide any medical advice, but I wish the best for you!

Everybody, let's send good vibrations trappedslider's way.
Title: Re: the end might be near?
Post by: trappedslider on November 19, 2012, 02:49:18 PM
Have you tried any over the counter antihistaminics? And what about corticosteroids? They might be expensive if your health insurance doesn't cover them, but they are good for keeping allergies from flaring up too badly. Also, I don't know how expensive your inhalers might be, but it seems to me that if you can adjust your budget to buy them, they might be a worthwhile investment.

Also, forgive the stupid question from the foreigner, but if you have a very dangerous asthma attack, couldn't you call the ER regardless of the state of your health insurance or medicare? Aren't they obligated to give you temporary healthcare to save your life? If they are, then all you have to do is keep a cellphone with you at all times and 911 on speed dial.

I';m already taking corticosteroids like advair at his highest dosage 500/50,

I think i may way have a way to explain this:

It's like a triangle, it takes three thick sides to keep me alive and without the xiolair one of the thick sides is wibbly wobbly to the point of non existing. The other two sides are barly holding in there.

and any long term use of steroids to keeps me alive has this risk http://www.mayoclinic.com/health/avascular-necrosis/DS00650 (http://www.mayoclinic.com/health/avascular-necrosis/DS00650) which has already caused me to have one hip replaced.
Title: Re: the end might be near?
Post by: nijineko on November 19, 2012, 05:25:42 PM
*ouch*



i happen to believe in resurrection (defined as the reuniting of the spirit with a perfect immortal body and becoming unable to die.) we are also taught that everyone who has ever been born gets this for free, no strings attached, regardless of affiliation.

i look forward to the time when that happens to you! (hope you don't mind the belief-influenced well wishes. ^^ )
Title: Re: the end might be near?
Post by: trappedslider on November 19, 2012, 07:25:37 PM
i happen to believe in resurrection (defined as the reuniting of the spirit with a perfect immortal body and becoming unable to die.) we are also taught that everyone who has ever been born gets this for free, no strings attached, regardless of affiliation.

i look forward to the time when that happens to you! (hope you don't mind the belief-influenced well wishes. ^^ )

you forget I belive the same as you lol  :)
Title: Re: the end might be near?
Post by: betrayor on November 19, 2012, 09:54:38 PM
Don't give up hope.....
The human body is a wonderful miracle,  people have recovered from worse situations.....
My mother had to have part of her lungs removed because of tumour,sure her lung capacity is much reduced now and she can exert herself like she used to but she proved the doctor wrong who said she only had 1 year of life after the surgery,and now she is still alive and well after 10 years......
Try to have as much as positive outlook as you can,positive psychology can do miracles for your health......
Title: Re: the end might be near?
Post by: nijineko on November 19, 2012, 10:37:53 PM
i happen to believe in resurrection (defined as the reuniting of the spirit with a perfect immortal body and becoming unable to die.) we are also taught that everyone who has ever been born gets this for free, no strings attached, regardless of affiliation.

i look forward to the time when that happens to you! (hope you don't mind the belief-influenced well wishes. ^^ )

you forget I belive the same as you lol  :)

>< it is my habit not to assume, even when i may know (if not remember) better. with an active forum such as this, and the other ones i hang out on, it is easy to slip a reference. sorry about that.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 19, 2012, 10:41:33 PM
Wow, even with Obamacare? Wasn't that supposed to solve these exact kind of problems?
Oh, you must have missed the real kick-in-the-nuts with this .... the payment for treatment of chronic conditions decreases each and every time you use it.

I don't follow. That sounds like a good thing. If you have a chronic condition, it'd make sense to pay less every time you make use of your healthcare provider.

Have you tried any over the counter antihistaminics? And what about corticosteroids? They might be expensive if your health insurance doesn't cover them, but they are good for keeping allergies from flaring up too badly. Also, I don't know how expensive your inhalers might be, but it seems to me that if you can adjust your budget to buy them, they might be a worthwhile investment.

Also, forgive the stupid question from the foreigner, but if you have a very dangerous asthma attack, couldn't you call the ER regardless of the state of your health insurance or medicare? Aren't they obligated to give you temporary healthcare to save your life? If they are, then all you have to do is keep a cellphone with you at all times and 911 on speed dial.

I';m already taking corticosteroids like advair at his highest dosage 500/50,

I think i may way have a way to explain this:

It's like a triangle, it takes three thick sides to keep me alive and without the xiolair one of the thick sides is wibbly wobbly to the point of non existing. The other two sides are barly holding in there.

and any long term use of steroids to keeps me alive has this risk http://www.mayoclinic.com/health/avascular-necrosis/DS00650 (http://www.mayoclinic.com/health/avascular-necrosis/DS00650) which has already caused me to have one hip replaced.

Wow, holy shit, I had no idea you were already on corticosteroids. And at the highest dosage! That is some strong stuff.

As a last resort, can't you take it to court? Aren't you supposed to be able to litigate anything in America?
Title: Re: the end might be near?
Post by: veekie on November 19, 2012, 10:50:24 PM
Litigation gets quite expensive most of the time. If he could afford it he probably doesn't need the assistance that badly.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 19, 2012, 10:54:01 PM
What about media attention? Couldn't he get enough media attention to get a pro bono lawyer to do it for the PR?
Title: Re: the end might be near?
Post by: nijineko on November 19, 2012, 10:55:16 PM
i think that he meant each time the amount the insurance pays for the treatment of chronic conditions decreases each time he tries to use it. maybe?
Title: Re: the end might be near?
Post by: Jackinthegreen on November 19, 2012, 11:44:21 PM
i think that he meant each time the amount the insurance pays for the treatment of chronic conditions decreases each time he tries to use it. maybe?

Based on the context that's my understanding as well.  To rephrase: The insurance pays a smaller part of the treatment each time meaning the person getting the treatment has to pay more out of pocket each time.

One of my first thoughts on why that might be is because they feel that if the treatment is good enough then the person can get to work and start paying for it.  Which -might- happen for -some- but I wouldn't count on it given how many chronic conditions are and how the pharmaceutical industry isn't willing to ease its grip on our collective balls.  Other possibilities include them just being cheap bastards as well as there being some sort of happy middle ground.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 20, 2012, 12:03:21 AM
What kind of a healthcare system is that??? I mean, I thought I had it bad because public health here is a synonym of decay, disrepair, bitter and hateful staff, a perpetual lack of supplies, funds and budget, endless waiting, more paperwork than it takes to kill a sequoia, iatrogenic infections and overall the absolute worst possible experience you can ever have in a hospital. But, you know, at least it's free.

I never thought I'd say anything positive about my country, huh. Guess there really IS a first time for everything.
Title: Re: the end might be near?
Post by: Jackinthegreen on November 20, 2012, 12:09:39 AM
Your country being?
Title: Re: the end might be near?
Post by: Shadowknight12 on November 20, 2012, 12:11:36 AM
Argentina. Never come here, no matter what they tell you.
Title: Re: the end might be near?
Post by: trappedslider on November 20, 2012, 01:02:35 AM
I'm currently on medicare pat D,and it have covers 90% of the cost of medications leaving me a with 10% the copay,which for the most part is under $5 for meds,however in the case for the xiolair the 10% is as i've stated 440 per shot,which i'm required every two weeks.

What was going on before,was that someone think it may have been the hospital itself who was footing the copayment for all these years stopped doing that for whatever reason.
Title: Re: the end might be near?
Post by: Jackinthegreen on November 20, 2012, 01:12:55 AM
Hopefully not derailing the thread too much, but I admit the most I really know about Argentina is my uncle helped put in a large part of your communications infrastructure through his work at L3 Communications.  I know I know more than that of course since I'm not surprised by your description of public health care there, but it still saddens me to hear of those kind of problems.

Hearing about medication costs reminds me of my mom and her schizophrenia medication that costs something like $1500 a month and insurance recently cut her off from that.  The good news is it worked quite well for her but the bad news is she's no longer on it.  As I mentioned I consider our pharmaceutical industry to have us by the balls especially after doing some more research and finding various study biases and even biases about the biases.  When you've got meta-level discrepancies something is definitely wrong.

I can imagine a little bit of what it's like for you Trapped since I have exercise induced asthma and have been sick for weeks before from overexerting myself.  Not pleasant of course, but that's the tip of the iceberg compared to your situation.

I'm guessing you've tried priesthood blessings?  I'm technically an inactive LDS member, in case you're wondering about how I might know some things.  Niji of course would probably be more helpful, but I'd be happy to lend what support I can.
Title: Re: the end might be near?
Post by: Shadowknight12 on November 20, 2012, 01:30:43 AM
I'm currently on medicare pat D,and it have covers 90% of the cost of medications leaving me a with 10% the copay,which for the most part is under $5 for meds,however in the case for the xiolair the 10% is as i've stated 440 per shot,which i'm required every two weeks.

What was going on before,was that someone think it may have been the hospital itself who was footing the copayment for all these years stopped doing that for whatever reason.

Ouch, a 1000 bucks a month in medicine sounds terribly expensive. Well, I hope you find some way to fix that, whether by getting financial aid from people or by working something out with medicare or your hospital. The way I've often seen it, necessity is the mother of invention. Give it some time and I'm sure you or someone else will figure out a way around it (even if it's something like a genius budget adjustment that frees up the money you need).

Hopefully not derailing the thread too much, but I admit the most I really know about Argentina is my uncle helped put in a large part of your communications infrastructure through his work at L3 Communications.  I know I know more than that of course since I'm not surprised by your description of public health care there, but it still saddens me to hear of those kind of problems.

Yeah, everything here is basically terrible. We're not as bad as Mexico, Columbia or Venezuela (yet), but as a citizen, I still need to live with the fact that every time I leave my house (and even while I'm inside it), I may get gunned down in the middle of the street or shanked in a public area for my meagre valuables. But I shouldn't complain. I'm young and I'm aiming to get out of here. It's the elderly and the disabled who have it worse, since they get the brunt of the economic crises we have all the time, they have to endure the worst of the healthcare system, and it's often impossible for them to improve their situation. They're also the main demographic to get beaten to death by criminals, because they're perceived as literal consequence-free punching bags. Able-bodied and neurotypical children and adults, in contrast, have a much better chance of surviving, not being regarded as prey, and improving their lifestyle.
Title: Re: the end might be near?
Post by: betrayor on November 20, 2012, 06:52:01 AM
Our goverment(greece) threatens that if we don't accept the changes that IMF and Germany dictates we will end up like argentina.....
Title: Re: the end might be near?
Post by: Shadowknight12 on November 20, 2012, 06:57:11 AM
Ahahaha wow, that is quite possibly one of the most brutally effective warnings I've ever heard of.

Whatever the IMF asks you to do to avoid that fate, do it. Even if it involves infanticide in the name of Satan. :p
Title: Re: the end might be near?
Post by: trappedslider on December 06, 2012, 02:18:54 PM
so good news..the earth is about to be invaded..wait that isn't good news at all....


Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool
Title: Re: the end might be near?
Post by: sirpercival on December 06, 2012, 02:23:46 PM
so good news..the earth is about to be invaded..wait that isn't good news at all....


Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool
:clap
Title: Re: the end might be near?
Post by: ariasderros on December 06, 2012, 02:35:18 PM
so good news..the earth is about to be invaded..wait that isn't good news at all....
Goodbye, and thanks for all the fish.


Quote
Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool
Yay, living is good.
Title: Re: the end might be near?
Post by: bhu on December 06, 2012, 03:10:53 PM
woot!
Title: Re: the end might be near?
Post by: awaken_D_M_golem on December 06, 2012, 03:49:00 PM
.
 ;) ... No more bucket list then?
Title: Re: the end might be near?
Post by: Quillwraith on December 06, 2012, 06:25:41 PM
so good news..the earth is about to be invaded..wait that isn't good news at all....


Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool
:) :D :clap
Title: Re: the end might be near?
Post by: Libertad on December 06, 2012, 07:14:22 PM
so good news..the earth is about to be invaded..wait that isn't good news at all....


Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool

Yay! :clap
Title: Re: the end might be near?
Post by: Quillwraith on December 06, 2012, 07:24:07 PM
I/we are glad for your survival.


I/we wish to know the identity of the 'invaders'. They will join me/us.
Title: Re: the end might be near?
Post by: Kajhera on December 06, 2012, 08:28:46 PM
Whew  :) Glad for you.
Title: Re: the end might be near?
Post by: Jackinthegreen on December 07, 2012, 12:40:22 AM
so good news..the earth is about to be invaded..wait that isn't good news at all....


Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool

[brofist]Living is good stuff, usually.  In your case, definitely.  Glad it's working out![/brofist]
Title: Re: the end might be near?
Post by: RobbyPants on December 07, 2012, 07:25:38 AM
Good news, so by switching my medicare plan my shots will be fully covered,so I get to keep on living  :cool
Congrats! Glad to hear it!
Title: Re: the end might be near?
Post by: nijineko on December 11, 2012, 07:03:33 PM
sincere congratulations. =D

if the invaders get to be too much, and you make it out this way, maybe we could hole up in The Vault and game.
Title: Re: the end might be near?
Post by: trappedslider on April 21, 2013, 07:29:53 PM
so as of last monday I finally started getting my much need shots that I hadn't had since August. :cloud9
Title: Re: the end might be near?
Post by: Jackinthegreen on April 21, 2013, 07:46:02 PM
Glad to hear you're doing better!
Title: Re: the end might be near?
Post by: bhu on April 21, 2013, 07:55:11 PM
good to hear!
Title: Re: the end might be near?
Post by: trappedslider on September 08, 2013, 04:11:35 AM
So to update:

So far it's been 4 months without a visit to the ER due to asthma. And next month (oct) I will be having all of my upper teeth removed so I can have dentures put in.
Title: Re: the end might be near?
Post by: awaken_D_M_golem on September 08, 2013, 04:04:28 PM
Happy about the 1st part  :)


Does the 2nd part involve that Earth Invasion you mentioned?
Title: Re: the end might be near?
Post by: trappedslider on September 09, 2013, 07:58:43 AM
Does the 2nd part involve that Earth Invasion you mentioned?

No it doesn't and one thing I forgot to mention is that I've also been diagnose as being bipolar...
Title: Re: the end might be near?
Post by: awaken_D_M_golem on September 09, 2013, 05:41:49 PM
Hey, having your life in the balance for so long , is unbalancing.
Bravo for speaking up about it.
Title: Re: the end might be near?
Post by: trappedslider on October 16, 2013, 11:11:43 PM
okay, here's an update:

Due to the ON/AVN I have had to have all of my upper teeth removed today , next week I plan to go to the dentist to get the whole dentures thing figure out.
Title: Re: the end might be near?
Post by: nijineko on October 19, 2013, 10:04:59 AM
ouch.
Title: Re: the end might be near?
Post by: awaken_D_M_golem on October 19, 2013, 03:34:56 PM
hugs


 :plotting ... you ever seen Chris Franjola on the Chelsea Lately comic show?
Title: Re: the end might be near?
Post by: trappedslider on October 26, 2013, 09:34:05 AM
Another update..so due to an issue with the dentist, I'll be going in on the 1st to see about some fake teeth, I go in on Monday to see my normal doctor to get a new set of order for the Xolair shots along with a referral to see an asthma doctor  who specializes in doing http://en.wikipedia.org/wiki/Bronchial_thermoplasty (http://en.wikipedia.org/wiki/Bronchial_thermoplasty) and see if it's something that could work for me. I also plan to try to get a complete check up since I'll be turning 28 this year and have a family history of cancer.
Title: Re: the end might be near?
Post by: trappedslider on February 25, 2014, 03:35:43 AM
last weekend (Saturday night/Sunday morning) I had an asthma attack that ended up with me being put on a ventilator. I was basically out of it till about Tuesday i think, but I didn't get out of the hospital til Friday.

I am currently getting back to normalish, and going to getting xiolair injections again starting Friday. I also be seeing a doctor who does bronchial thermoplasty in May, to see if this is an option for my asthma.

and that brings up date on my health issues lol
Title: Re: the end might be near?
Post by: nijineko on February 25, 2014, 05:08:18 PM
hang in there! we're rooting for you!
Title: Re: the end might be near?
Post by: awaken_D_M_golem on February 27, 2014, 05:33:38 PM
5+ days in the Hospital is nothing to sneeze at.
Mother Nature keeps trying to kill you, and failing.

My Dad got a Hip replaced, and they discharged
him day 2 ... turns out he had post-op Anemia.
They missed it, and had they known they normally
would have kept him til day 4.  Close call.
Title: Re: the end might be near?
Post by: Amechra on February 27, 2014, 05:56:34 PM
I hope and pray that nothing else come up.

Also: stop being sick; it's unhealthy.
Title: Re: the end might be near?
Post by: trappedslider on April 02, 2014, 04:24:02 AM
well i finally got my upper dentures  :D
Title: Re: the end might be near?
Post by: Amechra on April 02, 2014, 02:18:28 PM
That's great news!
Title: Re: the end might be near?
Post by: awaken_D_M_golem on April 02, 2014, 06:10:07 PM
... and the right smiley face  0:)
Title: Re: the end might be near?
Post by: trappedslider on October 14, 2014, 02:58:38 AM
Okay to bring up to date, my mom has a heart issue that i can't spell lol and so she had to quit her job, that was paying for the house and we are currently waiting to back cfrom both PARA and Social security on her disability. If they turn her down on both it means we will lose the house since the mortage hasn't been paid since may or so. But if PARA which is the state retirement turns her down,she gets back the money she put in and we can use that to get an apartment here in roswell.  The very worst case is that I have to move to texas where my dad and step mom live and redo ALL of my paperwork meaning there's a chance i could kick the bucket due not not having my shots and medications.
Title: Re: the end might be near?
Post by: Amechra on October 14, 2014, 03:01:27 AM
Can you pre-emptively get the paperwork for Texas filled out?
Title: Re: the end might be near?
Post by: trappedslider on October 14, 2014, 03:09:47 AM
Can you pre-emptively get the paperwork for Texas filled out?

It wouldn't help cuz i'd have get insurance again,see a doc and get approved for the shots again and that takes time.
Title: Re: the end might be near?
Post by: bhu on October 14, 2014, 03:15:00 AM
 :hug :hug :hug
Title: Re: the end might be near?
Post by: awaken_D_M_golem on October 14, 2014, 05:19:14 PM
Brutal.

If you can, don't go to Texas.  I have a half-cousin that moved there, from Tax-achusetts and romney care.  She came down with a Fast version of MS,
meaning she's going blind quickly and wheelchair bound soon.  Texas said tough beans.  She said:  "But I paid all my taxes".
Title: Re: the end might be near?
Post by: trappedslider on November 05, 2014, 10:43:06 PM
so,here's an update again : My mom didn't get approved for disability from her job, but she'll be getting the moeny she put into the system soon at some point. My current insurance Amerivantage will no longer be covering the area I live in, and the only other choices all have a copay requirement for the Xolair injections.  So, we're looking at moving up to Abq, cuz there might be more choices for medicare for me. We're also waiting on social security to figure out if mom will get that or not.

I also turn 29 on the 6th of Nov
Title: Re: the end might be near?
Post by: Amechra on November 08, 2014, 04:09:43 PM
Happy belated birthday.

That's terrible news. I hope it works out in a way that results in you getting your meds.

 :hug
Title: Re: the end might be near?
Post by: bhu on November 08, 2014, 05:08:11 PM
Mass hugs  :hug

We're rootin' for ya!
Title: Re: the end might be near?
Post by: trappedslider on November 21, 2014, 01:08:43 PM
well..i post from a room in ICU, i came in Tuesday night/Wednesday morning which due to the asthma, having to put a tube down my mouth to breath i missed the hunger games marathon at the theater  :shakefist but my brother was able to get my refund on a gift card.


i'll be moved to medical floor at some point today which means i should be out by Saturday...
Title: Re: the end might be near?
Post by: bhu on November 21, 2014, 03:50:36 PM
 :hug  good luck brudda
Title: Re: the end might be near?
Post by: awaken_D_M_golem on November 21, 2014, 04:35:06 PM
I'm alive = uhh Happy Birthday (?)


Amerivantage

Xolair

ICU


wtf are the Bean Counters having trouble with here?

$ of Xolair <<<<<<<<<<<<<< $$ of ICU
Title: Re: the end might be near?
Post by: trappedslider on November 21, 2014, 08:15:24 PM
lol, it's not that simple wish it were. The xiolair tones down the reaction and amerivantage come jan 1st no longer covers the new mexico state. But i will be up in Albq by then hopefully  which will give me a better chance to see about that thermal bronical thing that i mentioned a few pages back.
Title: Re: the end might be near?
Post by: trappedslider on November 22, 2014, 10:26:30 AM
so it looks like i will get to go home today
Title: Re: the end might be near?
Post by: nijineko on December 07, 2014, 06:07:11 PM
congrats, and prayers for your health!
Title: Re: the end might be near?
Post by: trappedslider on February 26, 2015, 09:22:27 PM
so, this past week i was again in the hospital due to asthma and pneumonia, which required me to be put on a breathing tube. It was taken out on Tuesday and i got out of the hospital today. I do have a slight fear that every time this happens my life expectancy and or lung capacity goes further down hill.

In march, i got in a for a bone density test,to see how well my bones are doing after everything that's has gone on with them.
Title: Re: the end might be near?
Post by: bhu on February 27, 2015, 01:14:35 AM
 :hug :hug
Title: Re: the end might be near?
Post by: trappedslider on March 18, 2015, 09:14:38 PM
So, I just got out of the hospital today, i had a breathing tube inserted again. I'm waiting for the insurance to say okay on the shots that i need, but i have decided that if the insurance  declines to do the shots, if i go back into the hospital i'm not going to have a breathing tube inserted. Basically I am sick and tired of dealing with it and it gets harder and harder to bounce back from each visit. If i do pass on, I'm going to take steps mainly letting my mom know who to contact for this forum to let you crazy ppl know.
Title: Re: the end might be near?
Post by: brujon on March 18, 2015, 10:59:47 PM
So, I just got out of the hospital today, i had a breathing tube inserted again. I'm waiting for the insurance to say okay on the shots that i need, but i have decided that if the insurance  declines to do the shots, if i go back into the hospital i'm not going to have a breathing tube inserted. Basically I am sick and tired of dealing with it and it gets harder and harder to bounce back from each visit. If i do pass on, I'm going to take steps mainly letting my mom know who to contact for this forum to let you crazy ppl know.

Can't you somehow take this to court? Force the state to foot some of your medical bill? Do something, anything?

Title: Re: the end might be near?
Post by: trappedslider on March 18, 2015, 11:42:33 PM
So, I just got out of the hospital today, i had a breathing tube inserted again. I'm waiting for the insurance to say okay on the shots that i need, but i have decided that if the insurance  declines to do the shots, if i go back into the hospital i'm not going to have a breathing tube inserted. Basically I am sick and tired of dealing with it and it gets harder and harder to bounce back from each visit. If i do pass on, I'm going to take steps mainly letting my mom know who to contact for this forum to let you crazy ppl know.

Can't you somehow take this to court? Force the state to foot some of your medical bill? Do something, anything?

No, i'm already on medicare and medicaid so,it's an insurance thing. But I have a friend who is a lawyer writing the insurance company a strongly worded letter this week.
Title: Re: the end might be near?
Post by: bhu on March 19, 2015, 02:38:35 AM
 :hug
Title: Re: the end might be near?
Post by: Nanshork on March 20, 2015, 01:08:39 PM
Holy shit I hope things work out.
Title: Re: the end might be near?
Post by: brujon on March 20, 2015, 01:56:59 PM
So, I just got out of the hospital today, i had a breathing tube inserted again. I'm waiting for the insurance to say okay on the shots that i need, but i have decided that if the insurance  declines to do the shots, if i go back into the hospital i'm not going to have a breathing tube inserted. Basically I am sick and tired of dealing with it and it gets harder and harder to bounce back from each visit. If i do pass on, I'm going to take steps mainly letting my mom know who to contact for this forum to let you crazy ppl know.

Can't you somehow take this to court? Force the state to foot some of your medical bill? Do something, anything?

No, i'm already on medicare and medicaid so,it's an insurance thing. But I have a friend who is a lawyer writing the insurance company a strongly worded letter this week.

Damn, that's tough. I've read that some americans are going to Cuba to seek cheaply available medical treatment, have you looked into it?
Title: Re: the end might be near?
Post by: awaken_D_M_golem on March 21, 2015, 04:18:45 PM
Hugs.

Good idea on Lawyer-ing up.
It shows you're still "F"ighting.

The new mental health parity laws, require access to that if you need it.
You need it, given how close to dead zero, your crisis is.
Can't breathe is torture, effectively Waterboarding by med care denial.
And having yet another impending Death slapped in your face again and again.

Title: Re: the end might be near?
Post by: trappedslider on April 20, 2018, 09:54:45 AM
So, it's been awhile since I last updated my health.

Anyway,last week (the morning of the 11th) had my right hip replaced just like the left one was replaced, however the operation itself went smooth but afterwards my left lung collapsed  and so I had a breathing tube inserted (ruining my 4 yr streak lol) and then removed on the 12th, which allowed me to be home where I am currently recovering, on monday I visit the doctor to get the stitching or whatever (it's not staples)) it is removed. I have been able to walk a bit without the use of a walker.

As for my shots, that has been going good.
Title: Re: the end might be near?
Post by: bhu on April 22, 2018, 06:53:32 PM
Good lord man, you have not had an easy decade.
Title: Re: the end might be near?
Post by: trappedslider on April 26, 2018, 11:25:59 AM
Tell me about it....
Title: Re: the end might be near?
Post by: awaken_D_M_golem on April 29, 2018, 01:39:59 PM
Hugs.


Y'know ... "As for my shots, that has been going good." ... plus your Avatar =

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